European Council of Enterostomal Therapy

We are a small charity set up to connect families who love a child with Hirschsprungs Disease (HD). We are based out of Southampton and work closely with Southampton Children's Hospital where all the children are treated. Our Aims are to: - Provide support for families who live with HD - Organise family get togethers for families of people who live with HD - Fund for medical support to the wards

he group meets twice yearly at a venue rotated around the country to discuss the following sections: benchmark surgical practices, critique neonatal surgical articles, develop nurse guidelines, develop nurse competencies, review parent information, national medical and patient safety alerts, discuss potential surgical publications and actively participate in clinical supervision in its broadest sense by networking and sharing problems